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C o n t a c t U s
If you would
like information, have suggestions, or need to contact someone, please
send email to the vmrhudson@yahoo.com .
O u r M i s s i o n
Since the discovery
of the defective CFTR gene in 1989, much has been done in the way of research
on cystic fibrosis. There is also a tremendous amount of research that
relates to cystic fibrosis, even if CF is not its main focus. With this
in mind, the main purpose of the Utah Valley Institute of Cystic Fibrosis
is to promote and encourage additional education, research, synthesis and
dissemination of research findings that relates to the amelioration of
cystic fibrosis pathology. We also desire to help fund clinical trials
of promising therapies for cystic fibrosis.
O u r H i s t o r y
The Utah Valley
Institute of Cystic Fibrosis was organized in January 1999 as a non-profit
corporation in the state of Utah. The founders had noticed that there was
a great deal of information related to cystic fibrosis, but the synthesis
of this information and the application of research findings to clinical
practice were often lacking. They felt that anyone who was involved (patients,
parents, professionals, researchers, students, etc.) with cystic fibrosis
could cooperate in the effort to improve treatment for cystic fibrosis
persons by a process of mutual education. The founders also believed
that there were effective therapies that were being overlooked because
they were nutritional in nature, or because the substances involved could
not be patented. It was felt that information about such therapies
should be disseminated to patients and their families for discussion with
their physicians. Hence, this website!
C h a r i t a b l e D o n a t i o n s W e l
c o m e !
In June of 2000, the Institute received tax-exempt status from the IRS, and in July 2000 the Institute was registered with the Consumer Protection Agency of the state of Utah as a charitable fundraising organization. If you desire to contribute to the Institute, monies will be used to pursue a clinical trial in the United States of reduced glutathione as a treatment for cystic fibrosis. Any contribution you make is tax deductible, and we will send you a formal receipt for your financial records. Send your tax deductible contribution as a check made out to "UVICF" and mailed to UVICF, c/o Valerie M. Hudson, 592 East 200 North, Orem, Utah 84097. Thank you!
